Our story

I discovered the complex world of DYS disorders with my daughter, who has been confronted with this invisible but very real handicap since kindergarten. The first signs are visible from a very young age, but difficult to diagnose.

With an inaudible language and an inability to recognize and memorize colors, a slowness of execution, clumsiness, loss of balance etc...

A lack of expression of the baby, as if he was "too serious" with very little interaction (mimics, smiles, laughter, babbling, slow walking sometimes...)

In short! The awakening is later around 8/9 months, and there! It's a relief!
There is also this marked hypersensitivity with what could be considered as an emotional immaturity, evaluated between 2 and 3 years later than the other children of his age, without any mental handicap, on the contrary,

his mind is bold, courageous, voluntary, persevering. Thus, at 8 years old, his autonomy and his "emotional immaturity" (or rather what is normally expected of a child of this age) would be psychologically estimated at the level of maturity of a 6 years old child.

But perhaps the energy she expends to compensate for her disability simply does not allow her to be on all fronts at once, with cognitive development becoming secondary to intellectual development.
Neuropsychological and psychomotor tests follow, as does the obstacle course to find a speech therapist. And the multiple approaches to the government and the knowledge of his rights.

It was during the 1st confinement during the COVID pandemic, that I was able to really evaluate her and notice a massive DYS disorder in my daughter's learning. Namely:

- Difficulties with knowing numbers,

- To find his way in time and space,

- Difficulty recognizing letters, everything is symbolic at this stage, the very concept of syllables is not acquired,

- Phonetics is complex...

And all this leaves us perplexed!
And then, where my daughter goes, the house goes! It's necessary to repeat, to repeat again and again more than of reason at the point to wear out its vocal cords in the instructions.

Nothing is ever really acquired, you have to constantly reactivate your knowledge.

It's also necessary to calm the excessive crying fits linked to hyper-emotivity, to states of emotional overload.

Here, forget about the "bio-hourly" meter, the peak hours, the off-peak hours!

There is no educational shift, only you and the to-do lists!
Your life becomes an agenda between Ortho, Ergo, Physio, subway, work, sleep... Magical parents, with compétitive dark circles under their eyes like insomniacs in ecstasy waiting for the arrival of the Three Kings on New Year's Day 2050!

At this point! Well, we are left to our own devices! And even worse!

We let our children go to the next grade, cultivating illiteracy and delays of all kinds.

Too many classes, lack of means in spite of the help put in place by the government.

Registrations on waiting lists... A grey horizon! It's therefore natural that I began to prepare and arrange daughter's classes so that she could progress in class, as the classes were not adapted to her understanding or to her work rhythm.

"The child who grows up becomes aware of his difficulties and will compensate by memorizing to hide his defects, his flaws, his lacks, to make disguised tricks to face the looks of his friends and to feel "normal", integrated".

The anxiety starts to be felt when waking up before going to school, with the fear of reading aloud, of not being able to participate in spite of the desire which does not miss.

Many tears, despair as well, lack of confidence and devaluation settle in despite an unfailing tenacity and an exemplary perseverance.

There is no doubt that DYS students are hard-working, they do not spare any effort. However, school dropout is already on the horizon and so is school phobia.

Faced with this observation, I told myself not to panic, if the state has recognized the handicap, there must be structures in place?

In absolute terms, there are ULIS classes (localized unit for school inclusion) which stigmatize them even more! Often unsuited to the general management of DYS, they find themselves overwhelmed by other problems of handicaps, sometimes heavy. And there we go from inclusion to exclusion!

And yes, it is a cold shower! Anger too! Discrimination is already present within the national education system which, despite its will, has only one solution to propose, if not random devices.

So we turn to the private sector and there we find exorbitant prices imposed on families, making access to specialized schools elitist, which have made disability a shameful business!

Get rid of the idea of the brave mother! With my heart in my shoulder, full of love, I decided to tackle the problem head on! I told myself that if my daughter doesn’t give up, then I have no right to do so and I will stand by her side to give her a future and hope. If there is no school for her, I will create one!

At the same time, I decided to create the dysif foundation in order to be able to raise funds and be able to set up its schools all over the world.

But also to work in collaboration with the politicians so that their children left on the sidelines are supported by scholarships and high quality professionalization courses in order to give them a diploma equivalence by a validation of the achievements of experience.

The question is are we really going to be heard in this factory of ignoramuses that school has become in terms of statistics?

This is why we need you in order to carry out these projects and be in the doing, the concrete to be able to give life to our objectives and demonstrate that the Dys children and the others left behind also have a future. of hope if they are given the opportunity!

Make donation

Aucun mode de paiement connecté. Contactez le vendeur.